As a participant in the ISCA (International Standard Cytogenomic Array) Consortium, Emory Genetics Laboratory retains patient samples indefinitely for validation, educational purposes and/or research. The submitted clinical information and test results are also included in a HIPAA-compliant, de-identified public database as part of the National Institute of Health's effort to improve diagnostic testing and our understanding of the relationships between genetic changes and clinical symptoms (for information about the molecular cytogenetic database visit the consortium website at
https://isca.genetics.emory.edu). Confidentiality of each sample is maintained.
Patients may request to withdraw consent for the storage of their sample and/or use of the data by: 1) calling the laboratory at 1-800-366-1502 and asking to speak with a laboratory genetic counselor or 2) visiting our website at http://geneticslab.emory.edu/opt-out.