Fragile X Education and Resources
The National Fragile X Foundation
The NFXF has patient friendly information that can be obtained from their website at www.fragilex.org or by calling (800)688-8765. The organization hosts an international conference for families and professionals. The next conference will be held on July 20-24, 2016 in San Antonio, TX.
FRAXA Research Foundation
FRAXA is an organization founded in 1994 by three parents of children with fragile X syndrome to support scientific research aimed at finding a treatment and a cure for fragile X syndrome. FRAXA hosts a listserv for families, teachers, and friends to discuss questions and tips about living with fragile X syndrome. You can find more information from their website at fraxa.org.
Greater Atlanta Fragile X Community Support Network
This parent led association can provide informational support and guidance for newly diagnosed families in the area. For more information, email firstname.lastname@example.org.
Centers for Disease and Prevention (CDC): Fragile X Information website
This is an informational website for families and physicians about fragile X-associated disorders. http://www.cdc.gov/ncbddd/fxs/