Down Syndrome Data and Biological Sample Repository
We are proud to announce that the families of children with Down syndrome who have participated in our studies at Emory University School of Medicine have contributed to the largest resource of clinical and epidemiological data and biological samples collected from infants and children with Down syndrome. We do our best to share this resource with investigators working on problems associated with Down syndrome worldwide. We share information and samples, but not personal information. We share these data only when a family has signed a consent form giving us permission to do so. To make this resource even more valuable, we may contact families in the future to update their current information and invite them to participate in new studies. We look forward to continuing our relationship with families and ensuring that their effort in research studies is maximized to its fullest extent.