The National Fragile X Foundation
The NFXF is dedicated to assisting those living with Fragile X patients and their families. To obtain information on Fragile X communities, awareness, research, news, and events go to the website or call 800-688-8765.
FRAXA Research Foundation
FRAXA, a non-profit organization, was founded in 1994 by three parents whose children were diagnosed with fragile X syndrome to support scientific research aimed at finding a treatment and a cure for fragile X syndrome.
FRAXA hosts a listserv for families, teachers, and friends to discuss questions and tips about living with fragile X syndrome.
Centers for Disease and Prevention (CDC): Fragile X Information
This is an informational website for families and physicians about fragile X-associated disorders.
