We are sad to announce that the NBS Connect Registry will be discontinued on February 28, 2019. We thank all of you for being a part of the NBS Connect community. The data that you have contributed will continue to be analyzed by researchers on the NBS Connect Team. We will also continue to work with our partners to explore alternatives to the NBS Connect Registry.
The recipes and their nutritional information will, in the future, be available on the MNT4P website at https://mnt4p.org/.
Other resources that may be of interest to you are:
MSUD Family Support Group: http://www.msud-support.org/
National PKU Alliance: https://npkua.org/
The Network of Tyrosinemia Advocates: http://notacares.org/
Groupe d'Aide aux Enfants Tyrosinémiques du Québec: http://gaetq.org/
Find a Genetic Counselor: https://www.nsgc.org/page/find-a-gc-search
Thank you for your participation and contribution to the NBS Inherited Metabolic Disorders community.
The NBS Connect Team